MediLad are looking for endometriosis patients to test their new Facebook Messanger App that helps diagnose endometriosis!Read More
One of the main questions I get asked is "What is the endometriosis diet?".
On my Nutrition section, I begin with The Basics, which is a great way to get started with the understanding the endometriosis diet.
Yet recently, I've been wanting to revisit this information to make it easier and more accessible, so I thought a perfect way to do this was through my column in Endometriosis News.Read More
My latest column in Endometriosis News is all about my journey of starting the endometriosis diet, and the roller coaster of extremes I went through, to get to the place I'm in now - which feels like the best place I've been so far.Read More
Endometriosis and the Gender Pain Gap
So it's my second week as columnist for Endometriosis News! This week I wrote about endometriosis and the gender pain gap. There's some shocking statistics showing just how badly women are ignored and treated in hospitals in comparison to men, and how we have to essentially prove our pain to doctors (how do you prove pain?!) before we are believed.
Here's a little excerpt from my latest column...
"I have never forgotten the moment. Lying on my back in an STI clinic, my legs up in stirrups, an older male doctor staring into my vagina. Looking up at me and shrugging, he dismissively told me, “I can’t see any reason for your pain. It’s nothing more than the niggling backache I get.” And he walked out so quickly that I didn’t even have time to ask a question or utter a response.
Recently, social media has been flooded with the story of a young girl with endometriosis who committed suicide. The details are unclear, so I wouldn’t want to assume that she took her life due to endometriosis, but she had been struggling with trying to get the right support from doctors in the past months and had been made to feel like she was exaggerating the pain for attention.
Sadly, yet I regret to say unsurprisingly, current research and other women’s stories back up her experience. Last year, The Independent reported that women with chronic pain conditions, like endometriosis, are more likely to be misdiagnosed with a mental health issue, wait longer to be seen than men in A&E, and are given lesser treatment when they finally are seen. As if that wasn’t damning enough, a study titled, “The Girl Who Cried Pain,” found that women have to prove just how sick they are before they’re treated with the same urgency and concern as men."
You can read the rest of my piece over on Endometriosis News. Let me know what you think!
'Living with Endo' Column in Endometriosis News
I am so excited to share this with you - my column, Living with Endo on Endometriosis News, has launched today.
It has been a dream all my life to have a column, and now writing a column for such an important platform about such an important topic is incredible.
My first column is an introduction to me, my journey and what my column will be about. In ways, it's similar to This EndoLife, but it'll still be unique to Endometriosis News. I'm so excited to share it with you!
You can have a read of my first piece here.
Ashley R.T. Yergens has written a Huffington Post all about living with endometriosis as a non-binary person and the challenges and exclusions that this community are facing around the disease.Read More
With all the podcast launch and all the stuff that came with it in the past two weeks, I've not had time to properly absorb or pen my response to the controversy that was all over the internet last week. The controversy I'm talking about of course, is that the University of Sydney is conducting a study into how endometriosis affects the well-being of men's sex lives.Read More
The Women's Health All-Party Parliamentary Group has found that women are not treated with dignity, are not provided with sufficient information about their treatment options, and are not told about treatment side-effects appropriately when counselled about their gynaecological health.
I'm honoured to be featured in this informative and accessible article in POPSUGAR Tips for Living with Endometriosis by Tori Crowther. It's a varied, accessible and open collection of advice. You don't need to do all it if it doesn't appeal to you, but try out the ones that do and see what works for you, or maybe try something you didn't expect would work, you might be surprised!Read More
The Women's March London was one of the most powerful things I have ever been involved in - in fact, probably the most powerful. Over the next week, there will be hundreds of stories being published about why we marched, about the politics, about the statistics, about the impact. But I want to share some of my more personal reasons for marching on Saturday. Why I felt it integral to stand up against a power who is spreading fear, hate and injustice. This isn't just about one man, it is so much more than that.Read More
You may have read that a Japanese train company has shamed women for applying makeup on the train. I have witnessed and experienced the judgement of other passengers as a result of finishing my makeup on public transport, yet how many of these passengers have thought about the many reasons women are doing this?Read More
It's Endometriosis Awareness Week all! Endometriosis UK have provided this insightful infographic to break down some of the confusion around the condition and to provide some up to date facts.
Keep an eye on Endometriosis UK's website and social media - they'll be releasing case studies throughout the week and have much more planned for the days ahead!
HIGHLIGHT OF 2016 PEOPLE.
Tickets have finally been released for the Endo What? film! The European Premiere is in London at the Prince Charles Cinema in Leicester Square on March 21st. Tickets are £10 and go toward "ensuring more girls, women and health care providers learn accurate, actionable information about endometriosis".
The Endo What? team have been on a long journey to get to this point and it would be amazing if we could support them to raise awareness through buying tickets, inviting friends and family and promoting the film.
A little bit more about the film...
It’s Time for a New Normal.
A normal where women with endometriosis know the facts and can make empowered choices. A normal that doesn’t involve multiple doctors, surgeries, misdiagnoses and years of pain.
The only film of its kind, Endo What presents solid, accurate information straight from the experts. They answer the questions you have, but aren’t able to ask.
They answer the questions you never even knew to ask.
Lena Dunham might just be my new hero (next to Lauren Singer).
Late last year, she publicly opened up about her long term battle with endometriosis in a raw and honest account, The Sickest Girl via her online editorial platform, Lenny Letter. More recently, she has had to take a step back from the Girls press tour due to the condition and posted her news to fans on FaceBook. Though it's awful to think of another being having to endure the symptoms of endo, to the point where they have to go from full time work to full time rest, her honesty about it was a relief to myself and I'm sure to many others, and the media lapped it up.
Whilst the media got it wrong in many ways, making claims that it usually affects women in their 30s and 40s (it can affect all females of a childbearing age), BBC Newsbeat took the time to call Endometriosis UK (whilst I happened to be visiting the offices) and speak to one of the trustees, Alice Smith. Alice is Young Ambassador at Endometriosis UK and is amazingly knowledgeable and passionate about the disease, after being diagnosed at a young age. You can read her interview on with Radio 1 here and also listen on the Newsbeat app.
Whilst it pains me to think of another female going through the struggles I know all too well, I am overwhelmingly grateful to Lena Dunham for making her difficulties known to the world. Being a young and talented female in the spotlight, she has ability to raise awareness and draw the attention of the media (whether they get it wrong or not) and the more we begin speaking about this hidden disease, the sooner others can understand what's happening to them and work towards diagnosis.
Picture 1 + 2 from BBC Newsbeat.
Picture 3 from Lena Dunham's The Sickest Girl article.