Scientists in Vancover have recently discovered cancer-causing gene mutations in deep-infiltrating endometriosis (though these cells are non-cancerous).Read More
The Women's Health All-Party Parliamentary Group has found that women are not treated with dignity, are not provided with sufficient information about their treatment options, and are not told about treatment side-effects appropriately when counselled about their gynaecological health.
I'm honoured to be featured in this informative and accessible article in POPSUGAR Tips for Living with Endometriosis by Tori Crowther. It's a varied, accessible and open collection of advice. You don't need to do all it if it doesn't appeal to you, but try out the ones that do and see what works for you, or maybe try something you didn't expect would work, you might be surprised!Read More
The Women's March London was one of the most powerful things I have ever been involved in - in fact, probably the most powerful. Over the next week, there will be hundreds of stories being published about why we marched, about the politics, about the statistics, about the impact. But I want to share some of my more personal reasons for marching on Saturday. Why I felt it integral to stand up against a power who is spreading fear, hate and injustice. This isn't just about one man, it is so much more than that.Read More
You may have read that a Japanese train company has shamed women for applying makeup on the train. I have witnessed and experienced the judgement of other passengers as a result of finishing my makeup on public transport, yet how many of these passengers have thought about the many reasons women are doing this?Read More
It's Endometriosis Awareness Week all! Endometriosis UK have provided this insightful infographic to break down some of the confusion around the condition and to provide some up to date facts.
Keep an eye on Endometriosis UK's website and social media - they'll be releasing case studies throughout the week and have much more planned for the days ahead!
HIGHLIGHT OF 2016 PEOPLE.
Tickets have finally been released for the Endo What? film! The European Premiere is in London at the Prince Charles Cinema in Leicester Square on March 21st. Tickets are £10 and go toward "ensuring more girls, women and health care providers learn accurate, actionable information about endometriosis".
The Endo What? team have been on a long journey to get to this point and it would be amazing if we could support them to raise awareness through buying tickets, inviting friends and family and promoting the film.
A little bit more about the film...
It’s Time for a New Normal.
A normal where women with endometriosis know the facts and can make empowered choices. A normal that doesn’t involve multiple doctors, surgeries, misdiagnoses and years of pain.
The only film of its kind, Endo What presents solid, accurate information straight from the experts. They answer the questions you have, but aren’t able to ask.
They answer the questions you never even knew to ask.
Lena Dunham might just be my new hero (next to Lauren Singer).
Late last year, she publicly opened up about her long term battle with endometriosis in a raw and honest account, The Sickest Girl via her online editorial platform, Lenny Letter. More recently, she has had to take a step back from the Girls press tour due to the condition and posted her news to fans on FaceBook. Though it's awful to think of another being having to endure the symptoms of endo, to the point where they have to go from full time work to full time rest, her honesty about it was a relief to myself and I'm sure to many others, and the media lapped it up.
Whilst the media got it wrong in many ways, making claims that it usually affects women in their 30s and 40s (it can affect all females of a childbearing age), BBC Newsbeat took the time to call Endometriosis UK (whilst I happened to be visiting the offices) and speak to one of the trustees, Alice Smith. Alice is Young Ambassador at Endometriosis UK and is amazingly knowledgeable and passionate about the disease, after being diagnosed at a young age. You can read her interview on with Radio 1 here and also listen on the Newsbeat app.
Whilst it pains me to think of another female going through the struggles I know all too well, I am overwhelmingly grateful to Lena Dunham for making her difficulties known to the world. Being a young and talented female in the spotlight, she has ability to raise awareness and draw the attention of the media (whether they get it wrong or not) and the more we begin speaking about this hidden disease, the sooner others can understand what's happening to them and work towards diagnosis.
Picture 1 + 2 from BBC Newsbeat.
Picture 3 from Lena Dunham's The Sickest Girl article.