Recently I was approached by Wellbeing of Women to write a guest post for their website, An Open Letter to An Endo Sufferer: Don't Give Up. Wellbeing of Women are a charity funding medical research into women's health, pregnancy and childbirth - including endometriosis. The lovely people at the charity asked me to share my story in an open letter, in hope that it may empower women to not give up.Read More
I probably don't need to ask you whether you remember having to tell your current partner or ex-partner that you had endometriosis.
Now the issues that can arise with endometriosis and love are highlighted in a new short film. Linked is a 30 minute short film, based in the future when you can find your soulmate on an app that links your DNA, your social media presence and internet activity together. The focus is set on an ex-couple, one of which is living with endometriosis. the film explores the challenges of living with a chronic condition, and how much we disclose to others close to us.Read More
Ever feel like you're meeting up with people, chatting away, but you're just not connecting? You feel removed, your mind is elsewhere, or maybe your lives have become noticeably different. In my Endometriosis News Column, Living with Endo, I explore how my endometriosis has led to years of loneliness, but how finding a community helped me cope with that loneliness,Read More
You might remember that a little while ago I wrote a review on Hug, the wraparound heat pack by Fiona Bennington. Fiona was recently featured on BBC Northern Ireland's programme; 'Made in Northern Ireland', and I was honoured to be asked on the show too.Read More
I know so many women are facing difficulties around endometriosis and maintaining friendships, and sadly, friends can sometimes find it hard to understand. To support with this, one of my most recent columns for Endometriosis News is what steps you can take when you are having difficulties with friends, and when perhaps it might be time to distance yourself from someone who is causing you more pain.
You can read the entire piece - Dealing with Friends Who Don't Understand Endometriosis here.Read More
Recently, I’ve been writing about endometriosis and friendships and how my social life has adapted over the years to accommodate endometriosis.
While this isn’t always easy, and sometimes can be painful, it is possible to still see friends and enjoy social activities. Admittedly, what you do now may be different from the things you’re used to doing, and you may not always be able to follow through with your commitments. But I’ve listed some things you can do to make your friendships stronger despite endometriosis, and things you can do together while listening to the needs of your body.Read More
Endometriosis can make you feel like you have no control over your life, especially your social life. In the past few years, I felt like my social life slipped away from me and changed and morphed in ways that were beyond my control (for better and worse). But recently, as I've been writing and reflecting on endometriosis and friendships for Endometriosis News, I've realised I had more power than I thought I had, and actually, it wasn't all as bad as I experienced it to be.Read More
I can't deny it. One of my biggest challenges around endometriosis, is the loneliness, the isolation and the fear of communicating with people.
In my Endometriosis News column, Living with Endo, I've written a series talking about my experiences and what helped me make friends, improve existing relationships, work with those friends who just don't seem to understand and finally, let go of the friendships that are no longer serving both individuals.Read More
Having a positive and enjoyable morning routine could help you battle depression, anxiety and manage your endometriosis symptoms. My latest column discusses how a routine could help and some tips to get started.Read More
There's a new petition doing the rounds, with only five days left.
The petition will impact the way endometriosis patients in America are treated - but American or not, I think it needs to be signed so we can pave the way for change. As I'm not American and don't fully understand how things work there with their endo treatment, I though it best I shared the actual petition...Read More
In one of my most recent articles for Endometriosis News, I'm talking about the various ways I use natural treatments to help me with my pain levels during my period or when I get a bit of a flare.Read More
One of the main questions I get asked is "What is the endometriosis diet?".
On my Nutrition section, I begin with The Basics, which is a great way to get started with the understanding the endometriosis diet.
Yet recently, I've been wanting to revisit this information to make it easier and more accessible, so I thought a perfect way to do this was through my column in Endometriosis News.Read More
My latest column in Endometriosis News is all about my journey of starting the endometriosis diet, and the roller coaster of extremes I went through, to get to the place I'm in now - which feels like the best place I've been so far.Read More
Endometriosis and the Gender Pain Gap
So it's my second week as columnist for Endometriosis News! This week I wrote about endometriosis and the gender pain gap. There's some shocking statistics showing just how badly women are ignored and treated in hospitals in comparison to men, and how we have to essentially prove our pain to doctors (how do you prove pain?!) before we are believed.
Here's a little excerpt from my latest column...
"I have never forgotten the moment. Lying on my back in an STI clinic, my legs up in stirrups, an older male doctor staring into my vagina. Looking up at me and shrugging, he dismissively told me, “I can’t see any reason for your pain. It’s nothing more than the niggling backache I get.” And he walked out so quickly that I didn’t even have time to ask a question or utter a response.
Recently, social media has been flooded with the story of a young girl with endometriosis who committed suicide. The details are unclear, so I wouldn’t want to assume that she took her life due to endometriosis, but she had been struggling with trying to get the right support from doctors in the past months and had been made to feel like she was exaggerating the pain for attention.
Sadly, yet I regret to say unsurprisingly, current research and other women’s stories back up her experience. Last year, The Independent reported that women with chronic pain conditions, like endometriosis, are more likely to be misdiagnosed with a mental health issue, wait longer to be seen than men in A&E, and are given lesser treatment when they finally are seen. As if that wasn’t damning enough, a study titled, “The Girl Who Cried Pain,” found that women have to prove just how sick they are before they’re treated with the same urgency and concern as men."
You can read the rest of my piece over on Endometriosis News. Let me know what you think!
'Living with Endo' Column in Endometriosis News
I am so excited to share this with you - my column, Living with Endo on Endometriosis News, has launched today.
It has been a dream all my life to have a column, and now writing a column for such an important platform about such an important topic is incredible.
My first column is an introduction to me, my journey and what my column will be about. In ways, it's similar to This EndoLife, but it'll still be unique to Endometriosis News. I'm so excited to share it with you!
You can have a read of my first piece here.
Ashley R.T. Yergens has written a Huffington Post all about living with endometriosis as a non-binary person and the challenges and exclusions that this community are facing around the disease.Read More
With all the podcast launch and all the stuff that came with it in the past two weeks, I've not had time to properly absorb or pen my response to the controversy that was all over the internet last week. The controversy I'm talking about of course, is that the University of Sydney is conducting a study into how endometriosis affects the well-being of men's sex lives.Read More